The CloSed project leaflets are going to be released soon and will be published in two different versions: A scientific leaflet targeting a specialised audience; A layman’s leaflet targeting patients, parents and patient associations. Stay connected with the CloSed project… read more →
The General Assembly Meeting of the CloSed project took place in London, England on November 11th, 2014 and was organised by Therakind and University College London (UCL). The meeting focused on the summary of main achievements of the first year… read more →
The next General Assembly Meeting of the CloSed project will be held in London on November 11th, 2014 and will be organised by Therakind and UCL. The meeting will mainly focus on a general update of the projects activities, achievements… read more →
On October 3rd, 2014, the first TEDDY NETWORK General Assembly was held in Castellaneta Marina (Taranto, Italy). The initiative was part of the seventh edition of the Foresight Training Course, organised by the Gianni Benzi Pharmacological Research Foundation, a short… read more →
On June 1st, 2014 the Dutch Genetic Alliance (VSOP) hosted the first Patient Advisory Board (PAB) workshop in Milan in conjunction with the ESHG (European Society of Human Genetics) Human Genetic Conference (May 31 – June 3, 2014).
The first CloSed scientific meeting took place in Paris on May 22-23, 2014. The meeting focused on three main topics: the development and finalisation of the clinical trial protocol the preparation of the first Patient Advisory Board (PAB) meeting the… read more →